$16,174.80 Raised

Nyree Saxby

Every single day I see my youngest daughter Chloe in pain and I know that what she is experiencing now is nothing compared to what is to come for her if a cure for VWM disease is not found. Unfortunately I’m not a scientist or a researcher, but I will do everything I possibly can to raise the money to accelerate the cure for VWM disease to save Chloe and hundreds of other children around the world. After being completely healthy until the age of 3, overnight Chloe lost the use of her legs and after 8 months of testing, she was diagnosed with Vanishing White Matter Disease, an extremely rare, degenerative and terminal brain disease. A bump to the head, high temperature, cold/ flu, stress or fright could kill Chloe. She is now confined to a wheelchair and VWM will next paralyse her little body to the point where she won’t be able to hold her head up, talk, see hear or eat. She will experience a lot of pain and suffering and die at a very young age if the cure for VWM is not found.

Supported by

$1,000 Ritebuild Pools

$1,000 Nest Emporium Thirroul

$1,000 Dean, Amanda & Jake Tobin

$500 LBPR

$500 Michael Taylor

$500 Darren & Jo Mortimer

$500 Fernwood Fitness Woonona

$500 Parker-Hunt Family

$500 Chelsea & Courtney Wiseman

$450 Mick & Terri Cuda (Micon Office National )

$200 Gosling Family

$200

$200 Janelle

$200

$200 Mark & Liz Martin

$200 Kerrie-Lee Lord

$200 Wendy Bilson

$150 Rachel Moon

$120 Joanne

$100 Joy Drady

$100 Cindy Cleary-Lozenkovski

$100 David Hackett

$100 Tracey Pinkster

$100 Tracey Pinkster

$100

$100 Fiona Robinson

$100 Dan

$100 Kylie Dundas

$100 Renae

$100 Glenys Grant

$100 Marilyn Popp

$100 Nicole Burns (Fairweather)

$100 Tarryn Wesche

$100 Meneke Eaton

$100 Steve and Melasande Carey

$100

$100 Paul & Jo Smart

$100 Jenkins Family

$80 jane

$55 Leonie Green

$50 Nicole & Gaz Laurie

$50 Mel Rumble

$50 Boyce Family

$50 Adel Jones

$50 Bruce and Erin

$50 Maree Gilmour

$50 Stan & Morgan Crinis

$50 Julee Brienen

$50 Wendy Grant

$50 Bergamini family

$50 Rachel Booth

$50 Angela Madden

$50 Mike & Alison Smith

$50 The Mather Family

$50 Jane Warren

$50 Mark Davies

$50 Kerry Hitchens

$50 Paterson Family

$50 Coastal Windows

$50 Chantal

$50 Katrina Gordon

$50 Narelle Langridge

$50 The Nestorovic family

$50 Aaron and Ryan Munteanu. WA

$50 Rachelle Jones Jorja and Jesse Smith

$50 Andromeda

$50 Robin Sumskis

$50 Flora Clarke

$50 Mainon family

$50 S Walker

$50 Carolyn Cowie

$40 Lang family

$40 Kerrie Pickering

$40 Tzanenas family

$40 Lara & Max Van Loo

$40

$40 Roslyn Bailey

$35 Reeta

$30 Sarah Cannon

$30 Maz

$30 Nerida

$30

$25 S Gescke

$20

$10

$5