Myself and three other incredible women will be taking part in the Great Illawarra 40km walk to help support beautiful local girl Holly Burns and her incredibly amazing family who are currently fighting a massive battle.
Holly is one of the most precious, gorgeous little girls you could ever meet.
She is only 6 years old and has tragically been diagnosed with an extremely rare and aggressive form of degenerative brain disease called Vanishing White Matter Leukodystrophy and is terminal.
There is no known cure or even treatment to slow down its progression, but they are getting closer and they need our help.
Although hard to predict, Holly is expected to live only a few short years. Let’s help this family in their fight and hope for Holly.