Latest News

18 January, 2019 Fundraising efforts continue for VWMD research at IHMRI It is less than two months until the annual Great Illawarra Walk and for the second year, all money raised will go towards research into Vanishing White Matter Disease (VWMD) at the Illawarra Health and Medical Research Institute (IHMRI).  Read More
30 May, 2018 New Look Great Illawarra Walk All funds raised in the 2019 Great Illawarra Walk will be funding research to be undertaken in the Illawarra - through Saving Chloe Saxby - at the Illawarra Health and Medical Research Institute (IHMRI). Read More
16 May, 2018 IHMRI continues research into VWM disease for Chloe Saxby As Chloe Saxby’s health continues to deteriorate from the incurable Vanishing White Matter disease (VWM), the hope for a cure or better treatment is more pressing than ever Read More
11 April, 2018 Support grows for rare genetic disease research IHMRI research into Vanishing White Matter Disease has received a significant financial boost after the organisers of the Great Illawarra Walk donated $100 thousand dollars. Read More
16 March, 2018 IHMRI researchers provide new hope for Chloe Saxby IHMRI researchers say new developments in stem cell research may hold the key to understanding Vanishing White Matter Disease, which could lead to a potential treatment for nine-year-old Chloe Saxby. Read More